Excerpt from the Official Report of


May 1, 2014

Cystic Fibrosis Awareness and Fundraising Walk

S. Simpson: I was happy to introduce my sister, Debbie, and nephew, Liam, earlier today. They've joined us here specifically around the commencement of Cystic Fibrosis Awareness Month for this, the month of May. This is a critical event for the 4,000 mostly young Canadians who suffer from this most serious genetic disease and for their families and loved ones who support their care and are concerned for their futures.

CF causes mucus buildup that damages the lining of the lungs as well as blocking an enzyme required for the intestinal digestive system. Sadly, there is no cure today for CF, and too often this disease is fatal.

Since 1960, Cystic Fibrosis Canada has invested over $140 million in research, care and support for those suffering from CF and for their families. For Liam and the thousands of other young people with CF, this support is critical in so many ways.

While there is no cure today, we do know that real progress is being made through research, including treatments that are now in play that have had positive results around certain strains of CF. The research is ongoing to expand on these successes, with the hope that we will build on these current discoveries to soon find treatments that either cure CF or ensure that it becomes a chronic disease that is manageable.

That work is ongoing, but it does need more support. On May 25 the annual Great Strides event will take place again at Queen's Park in New Westminster. This five-kilometre walk raises money and awareness for the fight against CF. I look forward to participating again in this walk and want to encourage all members of this House and those watching to be part of the walk or to make pledges to support those who are walking.

I truly believe that we are making real progress on this tragic disease. However, we all want this work to come more quickly to a successful conclusion, a conclusion that will be realized when we win the fight against CF.


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